For Every Little Heart - Amalie's Story

Baby Amalie was born eight weeks early and spent her first weeks in NICU, where she was growing and developing well. But at just three weeks old, her heart rate suddenly began to spike.

Mum, Ellis, has a genetic heart condition called Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT), meaning there was a 50% chance Amalie would inherit it too. Soon after, Amalie was also diagnosed with CPVT and started lifelong medication to help control her heart rhythm.

Just as things were settling, Amalie became seriously unwell again. In January 2024, she caught bronchiolitis and RSV and had to be ventilated and transferred from Wishaw General to Glasgow’s Royal Hospital for Children. She spent nine days in PICU while her family waited anxiously by her side.

When Amalie was admitted, Ellis and Grant were offered a room at Crossbasket House, meaning they could stay close to their daughter when she needed them most.

Today, Amalie still attends the cardiac clinic every few months. Her medication is taken twice a day and will likely be lifelong. Even simple illnesses need careful monitoring.

But throughout every setback, her family has never felt alone.

“The help we received was second to none. It made the hardest times a little bit easier. The charity funded services and equipment have been vital.”

Ellis - Amalie's Mum

So last year, they decided to give something back.

They took on the Kiltwalk, raising £3000 for Glasgow Children’s Hospital Charity.

“I found it a struggle, but I wouldn’t give up. I just kept thinking about Amalie and all the other kids who need help.”

And this year, they’re doing it all over again because cardiac conditions don’t just go away, they require ongoing support. Families like Amalie’s rely on specialist care, equipment, and practical assistance every single day.

This #HeartMonth, you can help make sure every child gets the same lifesaving care.